Wednesday, September 19, 2012

My sister, My best friend



I have been LITERALLY absent from blogging, and to be honest, I don't think I will be doing much of it anymore. Life has been nonstop in the fast lane since I moved back to Bama. I went to Mexico in July, came home and my sister got sick.

The thing is, she was diagnosed with Nephrotic Syndrome when she was 2 years old around (2001-2002). She was treated with oral chemo, steroids, and other meds and eventually she went into remission.




 She stayed completely symptom free until this August. She woke up one Sunday morning with a swollen face and we knew her illness was back.

Before swollen face:


Swollen face:


Little did we know, this time it's back with a vengeance.
Her doctor in Birmingham started her back on her steroids to try and get it back under control. Her swelling would not come down.
She was admitted to the Children's Hospital in Birmingham, Alabama, for 4 days and 3 nights to pull the extra fluid off of her body, and she lost 15 lbs in 4 days of nothing  but water weight! We went home thinking it was over for the time being.

We were released from the hospital on that Friday... she started her first day of Junior High (7th Grade) that Monday. Went to school Monday, Tuesday, checked in late Wednesday because she started swelling again, went all day on Thursday and stayed out Friday because she started throwing up. That Saturday, she was still throwing up, so we took her to the local ER. They gave her some meds and sent us home because all of her lab work and tests looked fine. On Sunday evening she was STILL throwing up, so we packed a suitcase(with anticipation of being admitted to the hospital again)and headed on down to Birmingham (an hour and a half away from my house.)

That is where we have been since August 26. 3 and a half weeks in the hospital. My sister is currently having to do dialysis 3 days a week because she is in kidney failure. At 12 years old. She is still throwing up every day, and because of this, she also has a feeding tube. The Doctors think her kidneys shut down as a result of dehydration from throwing up so much, but in all honesty, they can't say for sure what happened. They are positive her kidneys will "wake up" and being working on their own. That is what we are hoping for. We are giving them 2 more months to start working again before we begin to think of more permanent and long term treatment options such as a permanent cath for dialysis and transplant options. As of now, those things aren't even on the table as options. If and ONLY if we get to three months and she hasn't responded, will we even begin to discuss more permanent treatment options. We have NO idea how long we will be in the hospital. They say once we get the throwing up part under control a little better, we can go home and come back basically 6 days a week for labs/dialysis, plus continue with the feeding through the tube at home so, even after discharge we will have to stay local in order for her to receive the treatment she needs. We have a Facebook page called Prayers for Lexus Helton where my mother and I regularly update her progress or lack of several times a day or as much as we can. I would love for you all to go "like" her page to keep up to date on her condition and to see pictures and tidbits of information LIKE the first official fundraiser we are doing in her benefit! We are selling GREEN for Kidney Disease Awareness bracelets that look like this:

for $8.50 each! That price INCLUDES having the bracelet shipped right to your front doorstep! This is to help off-set the prices for the equipment she will need for at home care when we get discharged, because our insurance pays 0%! Anyways, if you would like to buy one, I have a Paypal account (breannarains@gmail.com) for easy payment by Debit card or you can get in touch with me via breannarains@gmail.com to work out another form of payment that is more convenient for you!
If you pay through PayPal, in the designated message place, please include your shipping address so I can mail yours to you when we receive them. We have to receive 25 orders before we can get them for that price and the DEADLINE is September 30! There is more info on the Facebook page!

I really hope, if nothing else, you will go "like" the Facebook page and if you pray, PLEASE pray for my little sister! Thank you so much!


Friday, July 6, 2012

Mexico on the brain.



The day I look forward to twice a year every year has finally come! 
The day we head to Mexico!
Tonight about 7 pm or so, I will be leaving my church parking lot with 50 other people (our biggest group yet!)  to head towards my favorite place on the planet... the canal in Reynosa, Mexico. I am so excited!!! So, not that I have been blogging very much lately anyways... but I will be away from the computer and therefore away from the blog until I get back. But, once I return, it will be blog central updating with tons of photos of my favorite niƱos! Not only do I look forward to seeing all of my "familia" down in Mexico, I also look forward to serving with the amazing group of people that goes down. We really become like family... and it's truly so much fun and such a blessing to our team just as much (or more) as it is to the people we go to serve. 

I absolutely can't wait to see these sweet little faces on Sunday morning! 







adios ♥

Thursday, July 5, 2012

Old friends



I love the Fourth of July so much! It's always fun to be with family and friends,




but this year was particularly fun for me because one of my old friends, Jacob Stiefel, is a super cool Southern Rock star in Nashville now and he was playing in Fort Payne for their Fourth of July celebration! 
Back when I was about 15(or16)Jacob used to be in this local band called Dixie Road with some other people that me and my mom were close with. 




They used to play a lot locally and they would come shower or crash at our house afterwards and we would go to almost all of their shows and spend all day, even through sound check. It was a lot of fun and some of my best memories of high school. ANYways, I haven't heard Jacob play (or seen him) since I was 16 so it was so fun getting to see him again. And of course there were some other old friends there as well that I haven't seen since the band was together. 

Jacob lives in Nashville now and his band is called Jacob Stiefel and The Truth and they were so good!




He plays at all these cool places in Nashville and travels up North some to play, as well. He also has an album AND he's on iTunes. 


It was so funny... after the show, we went to his merchandise table to see him and he had a LINE of people waiting to get his autograph. It was strange haha because we look back and remember him so differently than people see him now. 


Sometime around 2008.

Now.
(as you can tell, he still likes to wear his shirt unbuttoned haha; some things never change!)


The good thing is, he is still the same Jacob he was when I met him... just a little more famous haha! Either way, it was such a fun time... and the fireworks afterwards were awesome! It was totally worth driving an hour to Fort Payne to hear him and the band... and now I have their album on iTunes so next time I go to a show(and I will go to another show) I will be able to sing along! :)